Claire's Journal -- 21st Month
was up at 4am. Mom was guessing she was just hungry, so she
fixed a bottle and they both got back to sleep around 5am.
Claire drank about 3oz.
was up until after 3am. Dad put her down around 2am and mom
took over after that. She was crying and crying and while
it is probably very good for her lungs, mom wants her to be
comfortable. Dad mentioned he'd given her some mylacon, so
that wasn't an option for mom. She fixed her a nice bottle
and they snuggled together on the daybed in Claire's room
and mom fed Claire. It calmed her down and eventually she
was able to get back to sleep. Still no ideas what her little
problem was, but something was surely bothering her.
Friday was a typical day. Claire is starting to do her 'random' cry thing where she will be laying still and seemingly content and then 'jump' and start crying. Mom thinks it is time for a new prescription... and orders it.
had a terrific night.
had a terrific night. She had a fun day too, going to daycare
and playing with mom in the evening. The family went out to
dinner and Claire drank most of her her 9oz bottle. Then at
home, mom ate her ice cream and fed Claire with her free hand,
then Claire decided she didn't want to eat anymore, she was
full. She layed in mom's lap and fell asleep. When mom went
to put her in her bassinet, she didn't even open her eyes,
much less put her thumb in her mouth. She was a very tired
and full little baire. She had about 20 oz today.
was up until about 1:30am. Crying.
had a nice Thanksgiving.
slept well last night.
slept great last night. The past couple nights, mom has put
her on her side and she rolls over onto her back and sleeps
hard. Mom also noticed that lately she hasn't been snoring.
That's kinda neat.
Claire was up for church. Mom gave her a quickl sponge bath and picked out a cute outfit for her to wear. She was asleep the first half of mass, and drank a few oz, then Grandma held her and she fell asleep. She slept all through breakfast and then she slept for much of the afternoon. Mom fed her more when mom got up from her nap, it was a long night last night with the late football game yesterday and lots of family and friends visiting.
Claire slept well through the night, and she knew she'd need her rest because there was big fun in store all day today. Lots of friends and family over for lunch and a fun football game in the evening. Claire didn't get to go, but didn't even notice as she was asleep by 10pm, but up again around 1am, as everyone was stumbling in from the football game. Claire's team lost, sad, but next year will be better for them... and Claire may have a few more team outfits by then too! She's thinking of burning the ones she has, as they didn't yeild wins like she was hoping for.
was up only once with a cry, but quickly went back to sleep
before mom even got out of bed, around 4:30am.
had a great day and a great night. She didn't drink more than
about 23oz today, but was a very good baby with lots of smiles
had about 30 oz today. She enjoyed a nice Wednesday tho her
PT appt was cancelled, due to insurance problems. Evidently,
Claire ran out of visits before the referal period ended.
They gave her 8 visits for 2 months, but she goes to PT twice
a week, so it was inevitable. Mom only found out just before
the visit as the PT called to tell her she was out of visits.
Mom spent the next 35 minutes on the phone (34 of it on hold)
trying to get everything squared away. Of course, by the time
it was resolved, the appointment time had ended, so Claire
couldn't go, but it was time for her OT, and they made it
there a couple minutes late. She hasn't had OT as often, so
she still had a few visits left, but with the new increase
in visits, things were looking good. Mom had to call the insurance
back during Claire's OT visit to remind them to fax the new
referal to the Rehab office. Once it came, she was able to
reschedule Claire for that afternoon.
had a great day. She seemed to not be able to drink enough
all day. Mom is going to have to make the shakes a little
thicker to keep her appetite in check (never thought we'd
be saying that!).
slept through the rest of the night after waking up at midnight.
She was hungry and mom fed her about an oz before she looked
too tired and uninterested. So mom put her back in her bed and
she eventually, quietly fell asleep.
Mom woke her in the morning, and she wasn't sweaty as she usually is. A nice 6oz bottle with vitamins and change of diaper and Claire was soon off to daycare. Claire fell asleep before leaving and once she hit the cool air outside, mom thought for sure she'd wake up, but no, she continued to sleep until she reached daycare and was just fighting to wake up, she opened her eyes a bit while mom took her from her carseat and put her in a playpen in a dark room at daycare so she could go back to sleep. She appreciated that.
slept pretty well during the night, and she was in a good mood
in the morning as she usually is. After meds and a bottle, she
was off to church and she was awake for the full mass. Still
full of smiles and finishing off her bottle. When she got home,
she drank more, this time, formula/ped, and drank about 4oz
before mom put her on the floor on her side. She seemed disinterested
in the food, but still awake. After a quick visit to the fabric
store, they were soon home again and mom fed Claire some and
they did some bicycles with Claire's legs and then mom worked
on Claire's sister's indian costume while Claire hung out in
her swing by mom, and eventually fell asleep.
She was up later, hungry and had another bottle and bath. Then off to sleep.
She had 16oz of shake today, and 4oz of ped/formula. If she stayed awake longer, she probably could have eaten more, but lately, when Claire decides she's tired, it is difficult to wake her (short of turning the ceiling fan on high and taking off her socks, but that's kind of a rude way to wake her and that is mom's last resort).
Claire was in bed and sleeping by 10pm.
had a lazy day. She was up drinking her 8oz of shake fairly
early, then just hanging out in her swing part of the day and
her boppy pillow part of the day and her side on the floor watching
tv part of the day. Mom had some sewing to do, and dad fed Claire
two more 8 oz bottles later in the day.
She had over 24oz for the day.
slept through the night but was up at 5am and hungry. Mom gave
her meds and fed her 4oz and put her back to bed, she was tired
and full. Mom woke her again for a sponge bath as Claire was
sweaty from sleeping, and then off to daycare, she downed another
4oz before she got there, finishing off the last few drops when
she arrived. She's showing no signs of seizures and her appetite
has picked up. Mom is thinking it is the new meds bottle.
But mom knows that all Claire's problems seem small when there are more heart-wrenching things going on in the world. One of them close to mom's heart is the passing of Baby Luke, the little boy who's mom went to court to help him thrive.
was up much of the night, finally settling down around 2am.
Mom isn't too sure what the problem is, but hoping that changing
to the new meds bottle will help her out some.
Mom got a call that Claire's PT was cancelled (after it was changed to today from Wednesday). Her PT was out sick. Then a call about her OT appt today. Seems the Insurance company never recieved info to 're-up' her therapy from the ped office. sad. So now Claire had to have her appts cancelled until everything is approved. And there is now a chance that it may not be, so fingers crossed.
She had a nice relaxing day, waking up for her morning shake and then going back to sleep. She slept for a couple hours in the morning, then mom woke her to drink more and play. Mom tried to keep her up most of the evening, but by 8pm, she was passed out on mom's chest. Who could blame her, the only football game on was very slow, two very good defenses, but little or no scoring. Mom enjoyed the second half, and Claire was fast asleep in her own bed by then. Dad had to watch the game in the family room, as the team did much better when he was out there. Too funny. Ol' dad can be supersticious sometimes.
Mom was in bed before midnight. Dad followed in sometime afterwards.
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