Claire's
Journal -- 31th Month |
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October
10 |
Claire
was up in the middle of the night coughing again. Mom went
in and put her on her side and she quieted down until monring,
when she started coughing again, mom did the same thing and
then went to get her some food. She ate about 4oz after drinking
an oz or two of pedialyte, then mom got dressed and Claire
napped just before the trek off to daycare and work. | |
October
9 |
Claire
was up starting around midnight and until she finally tired
out around 4am. Mom was up and down as Claire was coughing
and coughing. Unless he was on her side or tummy, she wasn't
going to be able to sleep. Since she's rolling over so well
(and so proud that she wants mom to come and see everytime
she's on her back), she doesn't stay in a position that allows
her to sleep well. On her back, mom thinks, her drainage goes
down her throat and tickles her, so she coughs and coughs
and it is so pitiful and nasty sounding, esp when it sounds
like she's gagging. Mom goes in and puts her back on her side
or tummy, and 20 minutes later, Claire is coughing again. | |
October
8 |
Claire
had a banner day! | |
October
7 |
Claire
slept through the night. Mom was up early and showered then
got Claire up. She was wide awake. | |
October
6 |
Claire
had a pretty good day. Mom filled her tummy up and she seemed
just fine... handling her gingerly, so she wouldn't gag and
lose her breakfast mom set her on her side after breakfast
and went in the shower. Claire kept her food down even at
her school and mom was so happy! At her school, they fed her
at 11am, and at 12noon she brought it back up... so not much
food at school. At home, mom fed her more, and she kept it
down for a little while. She coughed and brought it back up
again... twice... but still kept much of it down. | |
October
5 |
Claire
slept well and mom got her up for a nice big breakfast. She
did pretty well and kept it down fine for a while. Dad took
over after a bit as mom had a meeting. Mom waited patiently
for dad to get home and just as mom was running late, and
dad hadn't arrived home yet, Claire threw up all over the
comforter on Mom and Dad's bed. She was laying on a towel,
but seemed to completely miss the towel... the little stinker. | |
October
4 |
Claire
slept through the night. Mom too. | |
October
3 |
Claire
slept through the night. Mom heard her talking for some of
the night. Lately, Claire has been making some fussing noises
(her trying to roll from tummy to back) and then some talking
noises (after rolling over, time for playing) around 4am.
Mom just lets her talk... she isn't fussing, just talking,
maybe in Japanese. | |
October
1 |
Claire
had a good time at church. Her daddy held her much of the
time and fed her. Big brother held her as much as he could
so he wouldn't have to kneel, stand, etc. Big sister was pretty
well behaved, still has a few things to work on, like not
sneaking in toys to chuch. Even a necklace can keep her preoccupied
for most of church and is quite a distraction to everyone
else... esp when mom tries to take it away and lays on the
threats. Overall, an uneventful mass -- thank goodness. | |
October
2 |
Claire
slept through the night. Mom woke up with a nasty headache.
Dad brought her some decongestants and it helped somewhat.
Big football gameday today so mom needs to get into shape
and get her gameface on. Sitter came just after 12:30pm and
big brother brough a couple friends to the game too. Big fun
was had by all, and even at a 3:30pm game, sunscreen would
have been smart to use. Who knew. It was a bit hotter than
anyone expected, but everyone stayed well hydrated. | |
September
30 |
Claire slept through the night. Mom checked on her this morning and she was awake and cooing. Mom picked her up and gave her meds, then fed her about 3oz of water. After the water, mom fed her about 4oz of food and Claire was a happy baby. Just before leaving for work, mom gave Claire her antib's, but Claire gagged on them (they are so awfully sickening sweet and thick) and threw up much of her breakfast. Mom was a bit frustrated and dad helped get Claire cleaned up and they were out the door. Claire fell asleep on the way to daycare, a little power nap and once she was there she was awake. At daycare, mom put her in her crib and she played for a bit as mom left for work. | |
September
29 |
Claire had a pretty good day. Dad changed her this morning and noticed her diaper was pretty dry. After school Claire's teacher said she had dry diapers most of the day, so mom is very concerned. Once home, mom fed Claire some cereal, then made her a mixture of pedialyte and yogurt with a little duocal mixed in.. She drank a few oz and then fought with mom over drinking more... her little lips pursed together as if to say she'd had enough and she was very tired too, so mom put her to bed. Mom will work ont he fluids in the morning, when Claire is more hungry. | |
September
28 |
Claire slept through most of the night. She's still got a very loose cough but seems to be keeping her food down relatively well. She went to PT today (OT was cancelled) and her therapist had a stander there for her to try out. She did great! Mom and the therapist were both very excited and the stander-guy seemed a little amazed at what Claire could do too! The stander they tried wasn't the one she will be getting (fingers crossed that it is approved) but a bigger one. The one that the therapist wants for Claire is a smaller one with more 'straps' and stabilizers for her to keep her head and body lined up better. It is going to be great. Claire really wants to stand and has been practicing for this big day, and showed everyone that, with a little support, she can do this! Mom teased the therapist that she wanted Claire walking by the time she's three... at 3 years old, Claire will be going through a different process of getting funding and financial help, and without insurance covering her therapies, she will have to start seeing different therapists at that time, so mom is hoping for some big strides here in the next 5 months. (fingers crossed). | |
September
26 |
Claire
slept pretty well last night, tho she had some coughing spells,
very little spit up was noticed in her crib. | |
September
25 |
Claire
wasn't too big on eating today, she did sleep pretty well
through the night as mom put a blanket on one side of her
so she couldn't roll onto her back... to see if that would
help keep her from coughing. Sure enough Claire was up only
once coughing -- around midnight. Mom was a little froggy
today as she got some good sleep... and some good coffee this
morning! Dad took the kids to church and came home with donuts
and lunch... he wasn't planning on going out again soon, and
the stove and oven are still out of commission... waiting
on those darn elusive new cabinets! | |
September
24 |
Claire was up much of the night again. Mom was up with her. She had a fever this morning of 101.8 in the morning, so mom gave her some motrin. She lounged around much of the day, not feeling too great and not big on wanting to play. | |
September
22 |
Claire
was up around 2am... mom went in to get her to drink more
pedialyte, about an oz every 1/2 hour or so. In the morning,
mom noticed the 4oz bottle was finished... not realizing that
the last time she was feeding Claire, there was probably no
pedialyte in the bottle. Mom was tired and the room was dark,
so ya gotta give her a little break there. | |
September
21 |
Mom
got the results back this morning and Claires med levels are
normal. What now? | |
September
20 |
Mom
though Claire felt hot when she dropped her off at daycare
and the nurse came over to take her temp. Mom loves that there
is a nurse always so close by. Her temp was relatively normal,
so mom decided to go to work. Claire had about 3 seizures
while at her school. Mom called the dr's office to get a level
taken and picked up Claire late in the afternoon -- took a
while to get the call back, and it gets mom a little frustrated
when it comes to Claire's seizures. May not get the results
back tonight, tho it is 'stat'. Mom will wait it out. | |
September
19 |
Claire
had a good day at PT today. | |
September
18 |
Dad was really under the weather today, so mom and Claire's big sister went to church. Her brother had gone to the beach overnight with friends... Claire had a good day... dad did not, feeling yucky all day. | |
September
16 |
Claire
is having a great week. She slept through the night and awake
very hungry in the morning. | |
September
15 |
Claire
had a nice day at daycare after sleeping through the night. | |
September
14 |
Claire
had a banner day today! | |
September
12 |
Claire
slept well last night but fussed a little during the night.
She was able to get herself back to sleep. Around 4am, she
was talking and mom had left her sock on her hand (with rattle)
and she was playing. In the monitor mom could hear the talking
and rattling, so mom had to be the bad guy and shut the party
down. Took off the rattle/ sock from her hand, turned off
the ceiling fan - it was a bit cool, and made sure the blanket
was over her. She went back to sleep shortly afterwards, and
so did mom. | |
September
11 30 months |
Claire
slept well last night. She was up fairly early, so mom got
up with her... they hung out for a while before it was time
to get ready for church. Claire did well during mass, eating
mostly, and not really wanting to go to sleep. She was full
of smiles, along with a mouth full of food, she's a riot! |
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